26.10.20 £1,008 Donation In Memory Of Husband And Daughter
Margaret Morris of Llanfairfechan has sadly lost both her husband and her daughter to MND. By holding various activities she has managed to raise £1,008 for our group in their memory. In the photo she is with her granddaughters who are handing over the donation which will help MND sufferers in the North West of Wales.
01.10.20 Association Visitors (AV) Needed
Could you support someone suffering from MND? Could you call someone to see how they are doing? The work of an AV can be very rewarding as you will be able to support a person with MND and their families during immeasurably hard times. The support from the MND team is always at hand, being both sympathetic and supportive.
Please get in touch with our Area Support Coordinator for more information at MND Connect - 0808 802 6262 - mndconnect@mndassociation.org
16.09.20 Caernarfon Golf Club Fundraising
Our thanks go to Alwynne Morris Jones and Caernarfon Golf Club for their fundraising . Mr Jones was club captain in 2019 and during this time £1025.60 was raised for our group during various fundraising events. We are very grateful for the support, and the money raised will help MND sufferers and their families in the area. Pictured is Mr and Mrs Jones presenting the money.
15.05.20 COVID-19 Outbreak Inquiry On Health And Social Care
As part of the Welsh Parliament’s inquiry into the impact of Covid-19 on Health and Social Care in Wales, the Wales Neuro Alliance has developed this survey for people affected by neurological conditions in Wales to complete. This survey seeks to draw on the lived experience of MND patients and their carers, during these times, and will be collated as evidence for the inquiry.
14.05.20 Summer Raffle - Play Online!
The Motor Neurone Disease Association is facing a devastating drop in income as a result of the COVID-19 crisis. Our group would be grateful if you could support us by playing our Summer Raffle online so that we can continue to support people with MND and their families. Thank you.
19.03.20 Walk To D-feet MND POSTPONED
Due to the Coronavirus outbreak, the 'Walk To D-feet MND' event on 16th May 2020 has been postponed until 2021.
16.03.20 The Soggy Bottom Boy’s Tribute Band Raise Funds
The Soggy Bottom Boy’s Tribute Band raise hundreds of pounds for good causes every year by performing in local venues. This year our support group was the grateful recipient of £100, and we thank band member Jim Earl for coming along to our meeting at Tŷ Golchi.
04.02.20 Save The Date!
Come together with friends and family (children and pets welcome!) for a walk along Llandudno promenade to raise awareness and money for Motor Neuron Disease. 'Walk To D-feet MND' takes place on 16th May 2020 and every step makes a difference. We walk for hope, we walk in support, we walk in memory and we walk so that one day we will see a world free of Motor Neuron Disease.
Click here for more information.
Click here for sponsorship form.
Click here for Walker Registration form and further information. Please note that you may also register on the day.
12.12.19 Bag Packing at M&S Bangor
Thank you to all the customers at M&S Bangor who gave so willingly and generously during our bag packing event on Saturday December 7th. Thank you also to the manager and all the staff for their warm welcome. The total donated came to £584.17!
Click here for more photos.
13.11.19 November Support Group Meeting
Today we welcomed a number of people to our monthly get together. Ted Parr attended with his daughter Anne to present a cheque for £702.54 following collections made at Pwllheli. Gloria Williams added another £60 to monies raised by her Great North Run, and Wayne Jones of Spar, Min y Nant, Llanberis Road, Caernarfon presented a cheque for £250 from the Blakemore Foundation via the Independent Retailer Scheme. Jenny Scott from Benllech had also made a box of Christmas cards for us to sell on our fundraising stall.
Click here for more photos.
09.10.19 October Support Group Meeting
Today we welcomed Gloria Williams to our gathering at Ty Golchi. She ran the Great North Run and raised £800 in memory of her husband Alun. She also presented a cheque of £200 from Tom Williams who sadly lost his mother to MND. In the photo is Karen (volunteer), Jen (group secretary), Gloria and Bill (group treasurer).
Click here for more photos.
24.09.19 Charity Concert Raises £1000
Back in June the Côr y Penrhyn male voice choir, along with the Stavanger Brass Band, held a charity concert for the Motor Neurone Disease Association and St Davids Hospice in honour of Alun Williams, a choir member who sadly died from MND. Last night Richard Shackelford from the MND Association was pleased to attend the choir's rehearsal at Neuadd Ogwen, Bethesda, where he was presented with a cheque for £1000 by Gloria Williams and choir chairman Haydn Davies. Thank you very much Côr y Penrhyn!
12.09.19 Certificate of Partnership Presentation
On September 10th, Betsi Cadwaladr University Health Board Neurosciences was awarded a Certificate of Partnership by the Motor Neurone Disease Association at the BCUHB Neurosciences Motor Neurone Disease Specific Advisory Group Study Day. In the photo we can see Annette Morris, Director of Neurosciences in BCUHB and Dr Liz Williams, Chair of the Neurosciences Motor Neurone Disease Specific Advisory Group (DSAG) being presented with the Certificate of Partnership by Dr Nicholas Cole, Head of Research for the MND Association.
Click here for more information
Click here to see more photos
04.09.19 Roger Sowersby Retires As Chairman
At our monthly gathering at Ty Golchi today, Roger Sowersby was handed a token of appreciation from Jo Cunnah (Volunteering Development Coordinator - Wales, NI and Isle of Man) for all his hard work during his time as Group Chairman. We are pleased that he will continue to attend the meetings and take part in fundraising.
23.07.19 'Asia to Anglesey' Talk
Well over 150 people attended an illustrated talk by Andy Fowell, Steve MacVicar and Roger Thomas at Canolfan Beaumaris on Friday 19th July. It was an enjoyable, informative and humorous evening about their epic fundraising cycle journey from Asia (Istanbul) to Anglesey (Holyhead). At the end of the night the grand total raised was revealed and the Motor Neuron Disease Association and St David's Hospice each received £10,131.25! Excellent!
Click here to see more photos
17.07.19 Fundraising BBQ and PIZZA
The Llanfairfechan and Penmaenmawr Rotary held a fundraising BBQ and PIZZA at Bryn Hedd, Penmaenmawr on Sunday July 14th to raise money for the North West Wales Motor Neurone Disease Support Group. There was a good turnout on a warm afternoon and an enjoyable time was had by everyone.
Click here to see more photos
25.06.19 BBQ and PIZZA
The Llanfairfechan and Penmaenmawr Rotary are holding a fundraising BBQ and PIZZA at Bryn Hedd, Penmaenmawr on Sunday July 14th. The fun starts at 12 noon and goes on until 4pm. All proceeds will go to our group and will be used to help those in the area who are affected by Motor Neurone Disease. Tickets cost £10. Hope to see you there!
Click here for more information
22.06.19 Fundraising at Tesco Llandudno
On a hot summer's day our lovely volunteers were busy collecting at Tesco Llandudno Junction. It was very easy finding volunteers for today's collection as 4 members of HSBC Llandudno staff kindly came to our rescue and it was so good to have them on board. Tesco customers were extremely generous once again and we collected over £1000!! Excellent! Thank you to Tesco, to our volunteers and to all who donated.
Click here to see more photos
23.05.19 Asia to Anglesey Cyclists Return
Huge congratulations to Andy Fowell, Steve MacVicar and Roger Thomas who completed their epic cycle journey from Istanbul to Holyhead today. By cycling an average of 65 miles a day over nearly two months, they rode 5,500 miles in total, through four mountain ranges on what’s known as the iron curtain cycle trail. They’ve raised over £20,000 so far for two charities, the MND Association and St David's Hospice. A large crowd awaited as they crossed the bridge over to Anglesey, and pupils from Treffos School had the honour of ticking off on their t-shirts the name of the last of the sixteen countries they had passed through. Please click here if you would like to make a donation
Click here for more photos.
19.05.19 Charity Concert by the Stavanger Brass Band and Côr y Penrhyn
At 7pm on Saturday 1st of June at Bangor Cathedral the Stavanger Brass Band and Côr y Penrhyn male voice choir will perform at a charity concert for the Motor Neurone Disease Association and St Davids Hospice.
This promises to be a very good evening's entertainment. The Stavanger Brass Band from Norway has been successful in a number of brass band competitions in Europe, while Côr y Penrhyn, with its roots in the slate quarrying village of Bethesda in the Ogwen Valley, are famous for their accomplished performances of old favourites and contemporary pieces.
Click here for tickets which cost £10, or pay at the door on the night.
14.05.19 New Banners
On Friday May 10th we held an information stand at Pwllheli Library where we unveiled our colourful new banners. Pictured on the banners are Sioned Roberts Jones and Roger Sowersby, both living with MND in North West Wales. We are very grateful to Sional for making such a fine job of our new banners and look forward to showing them off at the fundraising events we have coming up during the summer.
10.04.19 April Support Group Meeting
Today we welcomed Maggie Morris to our gathering at Ty Golchi. She handed a cheque for £800 to our Treasurer, Bill Griffiths, in memory of her dear daughter Anwen Gibson of Dwygyfylchi.
Click here for more photos.
20.03.19 March Support Group Meeting
At our March meeting we were pleased to welcome Suzanne Simpson from the Walton Centre. She is visiting a number of groups and branches in her role as MND Psychological Well-being and Social Support Advisor. Suzanne is seated in the middle of the front row with our chair Roger Sowersby on the right.
14.02.19 Fishing Competition in April
Calling all fishermen - here's your chance to take part in a fishing competition AND raise money for MND Association!
Date: 13th April
Venue: Holyhead Breakwater
Time: 4pm - 12am
12.02.19 Two New Asia to Anglesey Fundraising Events
Asia to Anglesey have arranged two fun events next month before they fly off to Istanbul. The first is on Saturday 9th March and is a cycle tour of all the Bull Inns on Anglesey. You are very welcome to cycle all or part of the route with Steve MacVicar, Andy Fowell and Roger Thomas, or you can join them in one of the pubs where they would be glad to meet you.
Click here for more information.
The second event is a Celtic Music evening with Band y Braich Melyn at Canolfan Beaumaris on Friday 15th March. There will be live music, dance, spot prizes and a raffle. Entrance costs £10.
11.02.19 From Asia to Anglesey
On the 28th March 2019 Steve MacVicar, Andy Fowell and Roger Thomas will fly to Istanbul, Turkey and spend the next eight weeks cycling home across Europe to Anglesey. Their aim is to raise £10,000 towards the MND Association and £10,000 towards the new St David's Hospice in Holyhead. Over two months they will cycle 5500 kilometres, cross 14 countries and climb 4 mountain ranges!
Click on their Facebook page to find out more and if you can please donate to support them.
08.02.19 February Fundraising
Thanks to Pat Jones (Charity Champion) for allowing us to collect for the North West Wales MND Support Group at the Bangor Tesco Store on Saturday 2nd February. The customers were ever so generous on a cold and frosty day and we raised £992.01! We have a brilliant team of volunteers who deserve a huge vote of thanks especially Roger who travelled by bus to Bangor and from the Town Clock to Tesco by wheelchair (and back to base)! Also, on Monday 4th February our stall of donated items at Ysbyty Gwynedd raised £173.25, making a grand total of £1,165.26p!
UPDATE: On Friday 15th February our hardworking volunteers were at Tesco Caernarfon where £517.62 was raised, bringing the grand total for February to £1,682.88! Thank you very much to everyone who supported our collectors.
Archive - News & Events 2018
01.12.18 Bag Packing at M&S Bangor
Thank you to all the customers at M&S Bangor who gave so willingly and generously during our bag packing event on Saturday December 1st. Thank you also to the manager and all the staff for their warm welcome. The total donated came to £506.46!
26.11.18 North Wales MND Care Coordination Service – One Year On
The North Wales MND Care Cooordination Service was launched in February 2017 when Kathryn Lancelotte and Angela Mitchell began working as MND Care Coordinators. They are employed by Betsi Cadwaladr University Health Booard (BCUHB), funded by a MND Association Ice Bucket Challenge innovation grant. The funding ran until October 2018 with a commitment from the Health Board to take up the funding if the service met agreed objectives.
These objectives included:
- providing all people living with MND and their carers in North Wales with a key worker
- providing a single point of contact to MND services in North Wales for people affected by MND and health professionals
- supporting people living with MND during periods of hospital admission and reducing length of inpatient stays.
All the objectives agreed were met within 13 months and a process to agree ongoing funding from the Health Board began on 13th March with a presentation to senior representatives of the Health Board supported by Sally Light, MND Association Chief Executive. Further tough funding meetings were held with various decision-making groups within the Health Board before ongoing funding was confirmed on 5th September.
Whilst we celebrate the continuation of the MND Care Coordinator posts, we are not complacent, recognising that there is still much that we can do to continue to improve MND services in North Wales. The MND Care Coordination Steering Group continues to meet and new objectives are currently being agreed with the Health Board. We are fortunate that the Health Board recognises the expertise and knowledge within the MND Association and has asked Kevin Thomas, RCDA, to continue as a member of the MND Care Coordination Steering Group.
More information about Kevin Thomas and Kathryn Lancelotte - click here
18.10.18 New JustGiving Page
We have a new JustGiving page to raise money for our group! If you would like to make a donation to provide support to local people with MND, their families and carers, then please click here.
Thank you very much.
28.09.18 Coffee Afternoon a Success
A big 'Thank You' to the Bethel ladies who held a Coffee Afternoon to raise money for MND and Macmillan. There were stalls, a raffle and a tombola. There was a good turnout by the villagers and over £700 was raised! Excellent!
12.09.18 Manchester and District Branch Chairman Drops In
At our September meeting we were pleased to welcome the Chairman of the Manchester and District Branch of the MND Association. Phil Bennet was on holiday in the area and learnt of our meeting from volunteers who held a bucket collection at Tesco in Porthmadog on September 7th. This collectionn raised £720.14 and we thank all the Tesco customers for their support.
Click here to see the photos.
It was also good to welcome Ted Parr and his daughter Ann. He was there to present a cheque for £750 - excellent fundraising Ted!
Click here to see the photos.
01.09.18 Coffee Afternoon
If you are free at 2pm on Friday, September 28th then you are welcome to come along to Bethel Village Hall for a coffee and a cake. There will stalls and a raffle and an opportunity to socialise while raising money for the North West Wales Support Group.
18.07.18 Treasurer Retires After 25 Years
Today John Williams retired from the post of Treasurer of the North West Wales MND Support Group. He has been Treasurer for twenty five years, as well as being the Secretary for a good many of those years too. We thank John very much for his hard work on behalf of MND and we look forward to continuing to see him at our meetings. In the photo we can see John (on the left) with the new Treasurer, Bill Griffiths.
13.07.18 North West Wales Support Group Appear in the Motor Neurone Disease Association's Quarterly Magazine
There is an article about our group in "Thumb Print", our charity's magazine, this month - the first time they've ever printed a story in Welsh! We are on page 6 and 7 - click here to read the e-book or click here to read the pdf.
11.07.18 Stall at Ysbyty Gwynedd
Thank you very much to everyone who supported our stall at Ysbyty Gwynedd today - we made a total of £167.81!
06.07.18 Collection at Tesco Extra, Bangor
Here are the team of collectors at Bangor's Tesco Extra. Once again the customers were VERY generous - to the tune of £799.55!! Thank you all for your time and effort and a special thanks to the Llanfairfechan & Penmaenmawr Rotarians (and Lykke from our Inner Wheel Club) for stepping in to save the day - very much appreciated!
Click here to see the photos.
16.06.18 Walk to D'feet MND
The North Wales Walk to D'feet MND took place on Llandudno prom on Saturday June 16th. Thank you to all who came to walk, and a big thank you to everyone who sponsored us.
Click here to see the photos.
13.06.18 Presenting a Cheque
We were pleased to welcome Gwen Owen who attended our monthly meeting to present a cheque for £100 to the group. Here she is with John Williams and Roger Sowersby.
25.05.18 The Big Charity Quiz
A Big Charity Quiz on behalf of the Motor Neuron Disease Association will be held on Friday 13th July 2018. Click here for more information.
14.05.18 Sirenian Singers Gala Anniversary Concert
On 7:30pm on June 9th 2018 The Sirenian Singers will perform the Mozart Requiem at St Giles Parish Church Wrexham. Taking part will be soloists Fflur Wyn (Soprano), Oliver Sammons (Baritone), Andrew Powis (Tenor) and Chloe Pardoe (Mezzo). All profits from the concert will be donated to The Motor Neuron Disease Association. Please click here for more information. Click here to buy tickets.
09.05.18 Bucket Collection at Tesco Bangor in July
At this month's meeting an appeal was made for volunteers to help with the bucket collection at Tesco Bangor on Friday July 6th 2018. Can you spare two hours? If so, please get in touch: Roger Sowersby - rogersowersby@gmail.com
24.04.18 WALK TO D-FEET MND ON JUNE 16th
Come together with friends and family (children and pets welcome!) for a 3.5 walk in aid of Motor Neuron Disease on Llandudno Pier. Registration from 10:30am and walk begins at 11am.
Click here for more information
Click here for Registration Form (Please complete this and return to Roger Sowersby at the address shown on the form to register for the walk. This will enable us to order the correct number of T-shirts.)
Click here for Sponsorship Form
18.04.18 Monthly Support Meeting
We were pleased to meet Paula and Rupert Leslie of Porthmadog at Ty Golchi today. Paula handed our Treasurer, John, £450 towards helping patients in our area which was raised at a Ladies Evening at the St. Cyngar Masonic Lodge, Porthmadog recently.
13.03.18 Monthly Support Meeting
The scones and teacakes were lovely at Ty Golchi today where we had an opportunity to share experiences and discuss items for the next Newsletter.
14.02.18 Launching The North West Wales MND Support Group's New Website
Today at our monthly Support Group meeting we were pleased to be able to launch our new bilingual website for those living with MND in the area, their carers, their family and their friends. Kevin Thomas, Regional Care Development Adviser, said "It looks fantastic. Well done and thank you so much to the team at Delwedd. The site looks very friendly and welcoming to users”.
A huge thanks to Delwedd for sponsoring our website.
16.01.18 Celebration of the MND Supporter Volunteers Network in Wales
Princess Anne, who is Royal Patron of the association, attended a reception at Aberystwyth Arts Centre on Tuesday to celebrate the work done in Wales by volunteers for the Motor Neurone Disease Association. She met people living with MND, their families and carers and she gave a speech.
At the event were five members of the North West Wales Support Group. Princess Anne met Kevin Thomas, Jo Cunnah, Roger Sowersby, Jennifer Roberts and Ceri Roberts. After lunch Jennifer Roberts gave a talk about her experience of MND and how she became involved in volunteering.
06.12.17 Christmas Lunch
We had a lovely festive christmas lunch at Ty Golchi today.
02.12.17 Bag Packing at M&S Bangor
A big THANK YOU to all who came to help pack bags at M&S Bangor on Saturday 2nd December.
Thank you to the manager and all the staff, and especially to all the customers who gave so willingly and generously, helping us raise £604.47 towards supporting MND sufferers in our area.
Next Meeting
The support meeting at Fron Goch on Wednesday 13th December has been cancelled.
We hope to be back in Tŷ Golchi for our meetings early next year.
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