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News & Events

01.12.18 Bag Packing at M&S Bangor

Thank you to all the customers at M&S Bangor who gave so willingly and generously during our bag packing event on Saturday December 1st. Thank you also to the manager and all the staff for their warm welcome. The total donated came to £506.46!

Click here for more photos.

Bag Packing at M&S Bangor

26.11.18 North Wales MND Care Coordination Service – One Year On

The North Wales MND Care Cooordination Service was launched in February 2017 when Kathryn Lancelotte and Angela Mitchell began working as MND Care Coordinators. They are employed by Betsi Cadwaladr University Health Booard (BCUHB), funded by a MND Association Ice Bucket Challenge innovation grant. The funding ran until October 2018 with a commitment from the Health Board to take up the funding if the service met agreed objectives.

These objectives included:

  • providing all people living with MND and their carers in North Wales with a key worker
  • providing a single point of contact to MND services in North Wales for people affected by MND and health professionals
  • supporting people living with MND during periods of hospital admission and reducing length of inpatient stays.

All the objectives agreed were met within 13 months and a process to agree ongoing funding from the Health Board began on 13th March with a presentation to senior representatives of the Health Board supported by Sally Light, MND Association Chief Executive. Further tough funding meetings were held with various decision-making groups within the Health Board before ongoing funding was confirmed on 5th September.

Whilst we celebrate the continuation of the MND Care Coordinator posts, we are not complacent, recognising that there is still much that we can do to continue to improve MND services in North Wales. The MND Care Coordination Steering Group continues to meet and new objectives are currently being agreed with the Health Board. We are fortunate that the Health Board recognises the expertise and knowledge within the MND Association and has asked Kevin Thomas, RCDA, to continue as a member of the MND Care Coordination Steering Group.

More information about Kevin Thomas and Kathryn Lancelotte - click here

North Wales MND Care Coordination Service

18.10.18 New JustGiving Page

We have a new JustGiving page to raise money for our group! If you would like to make a donation to provide support to local people with MND, their families and carers, then please click here.

Thank you very much.

MND North West Wales Support Group

28.09.18 Coffee Afternoon a Success

A big 'Thank You' to the Bethel ladies who held a Coffee Afternoon to raise money for MND and Macmillan. There were stalls, a raffle and a tombola. There was a good turnout by the villagers and over £700 was raised! Excellent!

Click here to see the photos.

Coffee Afternoon in Bethel

12.09.18 Manchester and District Branch Chairman Drops In

At our September meeting we were pleased to welcome the Chairman of the Manchester and District Branch of the MND Association. Phil Bennet was on holiday in the area and learnt of our meeting from volunteers who held a bucket collection at Tesco in Porthmadog on September 7th. This collectionn raised £720.14 and we thank all the Tesco customers for their support.

Click here to see the photos.

It was also good to welcome Ted Parr and his daughter Ann. He was there to present a cheque for £750 - excellent fundraising Ted!

Click here to see the photos.

Manchester and District Branch Chairman Drops In

01.09.18 Coffee Afternoon

If you are free at 2pm on Friday, September 28th then you are welcome to come along to Bethel Village Hall for a coffee and a cake. There will stalls and a raffle and an opportunity to socialise while raising money for the North West Wales Support Group.

Click here for more information.

Coffee Afternoon

18.07.18 Treasurer Retires After 25 Years

Today John Williams retired from the post of Treasurer of the North West Wales MND Support Group. He has been Treasurer for twenty five years, as well as being the Secretary for a good many of those years too. We thank John very much for his hard work on behalf of MND and we look forward to continuing to see him at our meetings. In the photo we can see John (on the left) with the new Treasurer, Bill Griffiths.

Treasurer Retires After 25 Years

13.07.18 North West Wales Support Group Appear in the Motor Neurone Disease Association's Quarterly Magazine

There is an article about our group in "Thumb Print", our charity's magazine, this month - the first time they've ever printed a story in Welsh! We are on page 6 and 7 - click here to read the e-book or click here to read the pdf.

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11.07.18 Stall at Ysbyty Gwynedd

Thank you very much to everyone who supported our stall at Ysbyty Gwynedd today - we made a total of £167.81!

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06.07.18 Collection at Tesco Extra, Bangor

Here are the team of collectors at Bangor's Tesco Extra. Once again the customers were VERY generous - to the tune of £799.55!! Thank you all for your time and effort and a special thanks to the Llanfairfechan & Penmaenmawr Rotarians (and Lykke from our Inner Wheel Club) for stepping in to save the day - very much appreciated!

Click here to see the photos.

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16.06.18 Walk to D'feet MND

The North Wales Walk to D'feet MND took place on Llandudno prom on Saturday June 16th. Thank you to all who came to walk, and a big thank you to everyone who sponsored us.

Click here to see the photos.

people on walk

13.06.18 Presenting a Cheque

We were pleased to welcome Gwen Owen who attended our monthly meeting to present a cheque for £100 to the group. Here she is with John Williams and Roger Sowersby.

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25.05.18 The Big Charity Quiz

A Big Charity Quiz on behalf of the Motor Neuron Disease Association will be held on Friday 13th July 2018. Click here for more information.

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14.05.18 Sirenian Singers Gala Anniversary Concert

On 7:30pm on June 9th 2018 The Sirenian Singers will perform the Mozart Requiem at St Giles Parish Church Wrexham. Taking part will be soloists Fflur Wyn (Soprano), Oliver Sammons (Baritone), Andrew Powis (Tenor) and Chloe Pardoe (Mezzo). All profits from the concert will be donated to The Motor Neuron Disease Association. Please click here for more information. Click here to buy tickets.

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09.05.18 Bucket Collection at Tesco Bangor in July

At this month's meeting an appeal was made for volunteers to help with the bucket collection at Tesco Bangor on Friday July 6th 2018. Can you spare two hours? If so, please get in touch: Roger Sowersby - rogersowersby@gmail.com

group of people

24.04.18 WALK TO D-FEET MND ON JUNE 16th

Come together with friends and family (children and pets welcome!) for a 3.5 walk in aid of Motor Neuron Disease on Llandudno Pier. Registration from 10:30am and walk begins at 11am.

Click here for more information
Click here for Registration Form (Please complete this and return to Roger Sowersby at the address shown on the form to register for the walk. This will enable us to order the correct number of T-shirts.)
Click here for Sponsorship Form

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18.04.18 Monthly Support Meeting

We were pleased to meet Paula and Rupert Leslie of Porthmadog at Ty Golchi today. Paula handed our Treasurer, John, £450 towards helping patients in our area which was raised at a Ladies Evening at the St. Cyngar Masonic Lodge, Porthmadog recently.

group of people

13.03.18 Monthly Support Meeting

The scones and teacakes were lovely at Ty Golchi today where we had an opportunity to share experiences and discuss items for the next Newsletter.

Click here for more photos.

Cinio Nadolig

14.02.18 Launching The North West Wales MND Support Group's New Website

Today at our monthly Support Group meeting we were pleased to be able to launch our new bilingual website for those living with MND in the area, their carers, their family and their friends. Kevin Thomas, Regional Care Development Adviser, said "It looks fantastic. Well done and thank you so much to the team at Delwedd. The site looks very friendly and welcoming to users”.
A huge thanks to Delwedd for sponsoring our website.

Click here for more photos.

Launching The North West Wales MND Support Group's New Website

16.01.18 Celebration of the MND Supporter Volunteers Network in Wales

Princess Anne, who is Royal Patron of the association, attended a reception at Aberystwyth Arts Centre on Tuesday to celebrate the work done in Wales by volunteers for the Motor Neurone Disease Association. She met people living with MND, their families and carers and she gave a speech.

At the event were five members of the North West Wales Support Group. Princess Anne met Kevin Thomas, Jo Cunnah, Roger Sowersby, Jennifer Roberts and Ceri Roberts. After lunch Jennifer Roberts gave a talk about her experience of MND and how she became involved in volunteering.

Click here for more photos.

MNDa Wales Volunteer Celebration

MNDa Wales Volunteer Celebration

06.12.17 Christmas Lunch

We had a lovely festive christmas lunch at Ty Golchi today.

Click here for more photos.

Cinio Nadolig

02.12.17 Bag Packing at M&S Bangor

A big THANK YOU to all who came to help pack bags at M&S Bangor on Saturday 2nd December.

Thank you to the manager and all the staff, and especially to all the customers who gave so willingly and generously, helping us raise £604.47 towards supporting MND sufferers in our area.

Click here for more photos.

Bag Packing at M&S Bangor

MNDA Support Meeting

Next Meeting

When: Wednesday, December 12

Christmas Dinner in the evening. Please contact Roger Sowersby for more information

Donate to MNDA

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JustGiving
We have a JustGiving page where you can make a donation online - click here

 

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