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News & Events

16.03.21 Support By Association Visitor During Lockdown

Lynwen Griffith is a Community Nurse living in Pwllheli. Lynwen was caring for someone with MND in her role as a Community Nurse and was looking for some support for them. There weren’t any Association Visitors in her area at the time so the MND Association asked her if she would like to volunteer as one, especially as there was a scarcity of Welsh speaking AV's. Throughout lockdown, Lynwen has continued with her voluntary AV duties, supporting four people by calling or texting. Thank you Lynwen.

Lynwen Griffith

19.02.21 Participants Wanted For Research Study

This is a study into changes in thinking and language in Motor Neurone Disease (MND) and requires people with MND and people who do not have MND.
This research focuses on the way that someone with MND may experience changes to their thinking and behaviour. They are looking for people with MND (ALS specifically) and healthy controls to take part in the study where they would be completing some tasks via Skype/Zoom (no in-person, face-to-face meeting). Anyone who takes part will receive a thank-you shopping voucher (value of £30).
Can you help? Click here for more information.

Participants Wanted For Research Study Poster

26.10.20 £1,008 Donation In Memory Of Husband And Daughter

Margaret Morris of Llanfairfechan has sadly lost both her husband and her daughter to MND. By holding various activities she has managed to raise £1,008 for our group in their memory. In the photo she is with her granddaughters who are handing over the donation which will help MND sufferers in the North West of Wales.

Caernarfon Golf Club Fundraising

01.10.20 Association Visitors (AV) Needed

Could you support someone suffering from MND? Could you call someone to see how they are doing? The work of an AV can be very rewarding as you will be able to support a person with MND and their families during immeasurably hard times. The support from the MND team is always at hand, being both sympathetic and supportive.

Please get in touch with our Area Support Coordinator for more information at MND Connect - 0808 802 6262 - mndconnect@mndassociation.org

16.09.20 Caernarfon Golf Club Fundraising

Our thanks go to Alwynne Morris Jones and Caernarfon Golf Club for their fundraising . Mr Jones was club captain in 2019 and during this time £1025.60 was raised for our group during various fundraising events. We are very grateful for the support, and the money raised will help MND sufferers and their families in the area. Pictured is Mr and Mrs Jones presenting the money.

Caernarfon Golf Club Fundraising

15.05.20 COVID-19 Outbreak Inquiry On Health And Social Care

As part of the Welsh Parliament’s inquiry into the impact of Covid-19 on Health and Social Care in Wales, the Wales Neuro Alliance has developed this survey for people affected by neurological conditions in Wales to complete. This survey seeks to draw on the lived experience of MND patients and their carers, during these times, and will be collated as evidence for the inquiry.

Take part here

Walk To D-feet MND

14.05.20 Summer Raffle - Play Online!

The Motor Neurone Disease Association is facing a devastating drop in income as a result of the COVID-19 crisis. Our group would be grateful if you could support us by playing our Summer Raffle online so that we can continue to support people with MND and their families. Thank you.

Click here to play

Walk To D-feet MND

19.03.20 Walk To D-feet MND POSTPONED

Due to the Coronavirus outbreak, the 'Walk To D-feet MND' event on 16th May 2020 has been postponed until 2021.

Walk To D-feet MND

16.03.20 The Soggy Bottom Boy’s Tribute Band Raise Funds

The Soggy Bottom Boy’s Tribute Band raise hundreds of pounds for good causes every year by performing in local venues. This year our support group was the grateful recipient of £100, and we thank band member Jim Earl for coming along to our meeting at Tŷ Golchi.

Bryn Hedd BBQ

04.02.20 Save The Date!

Come together with friends and family (children and pets welcome!) for a walk along Llandudno promenade to raise awareness and money for Motor Neuron Disease. 'Walk To D-feet MND' takes place on 16th May 2020 and every step makes a difference. We walk for hope, we walk in support, we walk in memory and we walk so that one day we will see a world free of Motor Neuron Disease.

Click here for more information.

Click here for sponsorship form.

Click here for Walker Registration form and further information. Please note that you may also register on the day.

Bryn Hedd BBQ

12.12.19 Bag Packing at M&S Bangor

Thank you to all the customers at M&S Bangor who gave so willingly and generously during our bag packing event on Saturday December 7th. Thank you also to the manager and all the staff for their warm welcome. The total donated came to £584.17!

Click here for more photos.

Bryn Hedd BBQ

13.11.19 November Support Group Meeting

Today we welcomed a number of people to our monthly get together. Ted Parr attended with his daughter Anne to present a cheque for £702.54 following collections made at Pwllheli. Gloria Williams added another £60 to monies raised by her Great North Run, and Wayne Jones of Spar, Min y Nant, Llanberis Road, Caernarfon presented a cheque for £250 from the Blakemore Foundation via the Independent Retailer Scheme. Jenny Scott from Benllech had also made a box of Christmas cards for us to sell on our fundraising stall.

Click here for more photos.


Bryn Hedd BBQ

09.10.19 October Support Group Meeting

Today we welcomed Gloria Williams to our gathering at Ty Golchi. She ran the Great North Run and raised £800 in memory of her husband Alun. She also presented a cheque of £200 from Tom Williams who sadly lost his mother to MND. In the photo is Karen (volunteer), Jen (group secretary), Gloria and Bill (group treasurer).

Click here for more photos.

24.09.19 Charity Concert Raises £1000

Back in June the Côr y Penrhyn male voice choir, along with the Stavanger Brass Band, held a charity concert for the Motor Neurone Disease Association and St Davids Hospice in honour of Alun Williams, a choir member who sadly died from MND. Last night Richard Shackelford from the MND Association was pleased to attend the choir's rehearsal at Neuadd Ogwen, Bethesda, where he was presented with a cheque for £1000 by Gloria Williams and choir chairman Haydn Davies. Thank you very much Côr y Penrhyn!

Bryn Hedd

12.09.19 Certificate of Partnership Presentation

On September 10th, Betsi Cadwaladr University Health Board Neurosciences was awarded a Certificate of Partnership by the Motor Neurone Disease Association at the BCUHB Neurosciences Motor Neurone Disease Specific Advisory Group Study Day. In the photo we can see Annette Morris, Director of Neurosciences in BCUHB and Dr Liz Williams, Chair of the Neurosciences Motor Neurone Disease Specific Advisory Group (DSAG) being presented with the Certificate of Partnership by Dr Nicholas Cole, Head of Research for the MND Association.

Click here for more information
Click here to see more photos

Bryn Hedd BBQ

04.09.19 Roger Sowersby Retires As Chairman

At our monthly gathering at Ty Golchi today, Roger Sowersby was handed a token of appreciation from Jo Cunnah (Volunteering Development Coordinator - Wales, NI and Isle of Man) for all his hard work during his time as Group Chairman. We are pleased that he will continue to attend the meetings and take part in fundraising.

poster

23.07.19 'Asia to Anglesey' Talk

Well over 150 people attended an illustrated talk by Andy Fowell, Steve MacVicar and Roger Thomas at Canolfan Beaumaris on Friday 19th July. It was an enjoyable, informative and humorous evening about their epic fundraising cycle journey from Asia (Istanbul) to Anglesey (Holyhead). At the end of the night the grand total raised was revealed and the Motor Neuron Disease Association and St David's Hospice each received £10,131.25! Excellent!
Click here to see more photos

Bryn Hedd BBQ

17.07.19 Fundraising BBQ and PIZZA

The Llanfairfechan and Penmaenmawr Rotary held a fundraising BBQ and PIZZA at Bryn Hedd, Penmaenmawr on Sunday July 14th to raise money for the North West Wales Motor Neurone Disease Support Group. There was a good turnout on a warm afternoon and an enjoyable time was had by everyone.
Click here to see more photos

Bryn Hedd BBQ

25.06.19 BBQ and PIZZA

The Llanfairfechan and Penmaenmawr Rotary are holding a fundraising BBQ and PIZZA at Bryn Hedd, Penmaenmawr on Sunday July 14th. The fun starts at 12 noon and goes on until 4pm. All proceeds will go to our group and will be used to help those in the area who are affected by Motor Neurone Disease. Tickets cost £10. Hope to see you there!
Click here for more information

poster

22.06.19 Fundraising at Tesco Llandudno

On a hot summer's day our lovely volunteers were busy collecting at Tesco Llandudno Junction. It was very easy finding volunteers for today's collection as 4 members of HSBC Llandudno staff kindly came to our rescue and it was so good to have them on board. Tesco customers were extremely generous once again and we collected over £1000!! Excellent! Thank you to Tesco, to our volunteers and to all who donated.
Click here to see more photos

volunteer

23.05.19 Asia to Anglesey Cyclists Return

Huge congratulations to Andy Fowell, Steve MacVicar and Roger Thomas who completed their epic cycle journey from Istanbul to Holyhead today. By cycling an average of 65 miles a day over nearly two months, they rode 5,500 miles in total, through four mountain ranges on what’s known as the iron curtain cycle trail. They’ve raised over £20,000 so far for two charities, the MND Association and St David's Hospice. A large crowd awaited as they crossed the bridge over to Anglesey, and pupils from Treffos School had the honour of ticking off on their t-shirts the name of the last of the sixteen countries they had passed through. Please click here if you would like to make a donation

Click here for more photos.

Asia to Anglesey Cyclists Return

19.05.19 Charity Concert by the Stavanger Brass Band and Côr y Penrhyn

At 7pm on Saturday 1st of June at Bangor Cathedral the Stavanger Brass Band and Côr y Penrhyn male voice choir will perform at a charity concert for the Motor Neurone Disease Association and St Davids Hospice.

This promises to be a very good evening's entertainment. The Stavanger Brass Band from Norway has been successful in a number of brass band competitions in Europe, while Côr y Penrhyn, with its roots in the slate quarrying village of Bethesda in the Ogwen Valley, are famous for their accomplished performances of old favourites and contemporary pieces.

Click here for tickets which cost £10, or pay at the door on the night.

Charity Concert

14.05.19 New Banners

On Friday May 10th we held an information stand at Pwllheli Library where we unveiled our colourful new banners. Pictured on the banners are Sioned Roberts Jones and Roger Sowersby, both living with MND in North West Wales. We are very grateful to Sional for making such a fine job of our new banners and look forward to showing them off at the fundraising events we have coming up during the summer.

Cyfarfod Mis Mawrth

10.04.19 April Support Group Meeting

Today we welcomed Maggie Morris to our gathering at Ty Golchi. She handed a cheque for £800 to our Treasurer, Bill Griffiths, in memory of her dear daughter Anwen Gibson of Dwygyfylchi.

Click here for more photos.

April Support Group Meeting

20.03.19 March Support Group Meeting

At our March meeting we were pleased to welcome Suzanne Simpson from the Walton Centre. She is visiting a number of groups and branches in her role as MND Psychological Well-being and Social Support Advisor. Suzanne is seated in the middle of the front row with our chair Roger Sowersby on the right.

Cyfarfod Mis Mawrth

14.02.19 Fishing Competition in April

Calling all fishermen - here's your chance to take part in a fishing competition AND raise money for MND Association!
Date: 13th April
Venue: Holyhead Breakwater
Time: 4pm - 12am

Click here for more information

Click here to visit the website of one of the Sponsors

Cyfarfod Mis Mawrth

12.02.19 Two New Asia to Anglesey Fundraising Events

Asia to Anglesey have arranged two fun events next month before they fly off to Istanbul. The first is on Saturday 9th March and is a cycle tour of all the Bull Inns on Anglesey. You are very welcome to cycle all or part of the route with Steve MacVicar, Andy Fowell and Roger Thomas, or you can join them in one of the pubs where they would be glad to meet you.

Click here for more information.

The second event is a Celtic Music evening with Band y Braich Melyn at Canolfan Beaumaris on Friday 15th March. There will be live music, dance, spot prizes and a raffle. Entrance costs £10.

Click here for more information.

Asia to Anglesey

11.02.19 From Asia to Anglesey

On the 28th March 2019 Steve MacVicar, Andy Fowell and Roger Thomas will fly to Istanbul, Turkey and spend the next eight weeks cycling home across Europe to Anglesey. Their aim is to raise £10,000 towards the MND Association and £10,000 towards the new St David's Hospice in Holyhead. Over two months they will cycle 5500 kilometres, cross 14 countries and climb 4 mountain ranges!

Click on their Facebook page to find out more and if you can please donate to support them.

February Fundraising

08.02.19 February Fundraising

Thanks to Pat Jones (Charity Champion) for allowing us to collect for the North West Wales MND Support Group at the Bangor Tesco Store on Saturday 2nd February. The customers were ever so generous on a cold and frosty day and we raised £992.01! We have a brilliant team of volunteers who deserve a huge vote of thanks especially Roger who travelled by bus to Bangor and from the Town Clock to Tesco by wheelchair (and back to base)! Also, on Monday 4th February our stall of donated items at Ysbyty Gwynedd raised £173.25, making a grand total of £1,165.26p!

UPDATE: On Friday 15th February our hardworking volunteers were at Tesco Caernarfon where £517.62 was raised, bringing the grand total for February to £1,682.88! Thank you very much to everyone who supported our collectors.

Click here for more photos.

February Fundraising

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