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Support & Care

Here you will find details of support which is available locally.

Click on the name for more information:

 

Kevin ThomasRegional Care Development adviser (RCDA), North Wales, Mid Powys & Isle of Man
I have worked for the MND Association since 2006. I am a qualified and registered Social Worker (DipSW), have an MSc in Health & Social Care Leadership, a BA (Hons) in Social policy & Social Welfare, and a post graduate Diploma in Change Management. Before joining the MND Association I worked in the statutory sector as a Social Worker, Social Work Team Leader, and Service Operational Manager working in Child Protection, Learning Disabilities and Physical & Sensory Disabilities.

As an RCDA my main responsibilities are to influence Service Development; support our Association Visitors; facilitate and deliver education & training; and support people affected by MND directly with complex case issues.

I am pleased to have been involved in the development of several areas of service improvement over the years. A major piece of work over the past few years has been making the business case for two part-time MND Care Coordinators for North Wales funded by the MND association and employed by the Health Board. These posts are funded for a time limited period by the MND Association with a commitment from the Health Board to continue funding if clear outcomes are demonstrated. A key focus over the next year will be to secure this Health Board funding.

Another key area of my work is supporting our Association Visitors who have an invaluable role to play in supporting people affected by MND. We have increased the number of Association Visitors to six across North Wales. It is my job to support these AVs and keep them up to date with relevant information in supporting people affected by MND.

Facilitating and delivering education and training for professionals ensures best practice in MND is promoted across the workforce. This ranges from an annual pan North Wales Study Day for professionals, awareness training to domiciliary care agencies, residential and nursing care homes and working with partners such as the hospices to deliver training sessions together.

Despite a strong focus on service development, at times there are complex issues that require my direct involvement in case work to try to resolve problems. This requires a good knowledge of statutory duties and current legislation and policy. It also requires networking skills with professional colleagues in the statutory sector at various levels to influence change.

Jo CunnahJo Cunnah Volunteer Development Coordinator Wales, Northern Ireland and Isle of Man

I have worked in Volunteer Management within the Health Charity Sector for over 14 years following a career change from Financial Services in 2003. My role involves recruiting and supporting Volunteers in a number of roles and in particular Volunteers within our Branch and Group networks.

I have been with the Association for almost three years and in that time I have been lucky enough to be part of a fantastic team who have helped to develop our reach across North Wales. Together, we have strengthened the number of Volunteers within the Clwyd Branch, the North West Wales Group and increased the numbers of Association Visitors from one to six. This means we have not only been able to significantly increase the level of much needed support we provide to People with MND and their families but also offer that support in a variety of ways.

A particular highlight for me has been the development of the North Wales Forum. The Forum has enabled staff and Volunteers to come together to discuss, shape and develop our work across North Wales and in just a year this has grown into something very special indeed.

Working with Volunteers is my passion and I am extremely lucky to be able to work with such an amazing team of Volunteers across North Wales. Without their hard work, commitment and support we simply couldn’t do what we do so I hope this passion shines through when people meet me.

On a personal note, I live in North Wales with my family. I enjoy cooking, anything to do with musical theatre and after quite a few years I am still persevering with trying to learn how to play the piano!

MND Care Coordinator North West Wales

My name is Kathryn Lancelotte and I would like to introduce myself as one of the two new Motor Neuron Disease Care Coordinators covering North Wales. My area will be the North West although I will also cover the North East when my colleague Angela is not working.

We have been in post since the end of January 2017, but as a new service, time was needed to set up the administrative side of the role. However I am now very pleased to be making contact with people and working alongside my multidisciplinary colleagues to achieve the best quality of life possible for every individual person and their family that are being affected by this condition.

I come from a nursing background and working as a community nurse before specialising and becoming a Macmillan nurse. I have been living and working in London for the last 15 years but returned back to live in my home area last autumn.

My interest in Motor Neuron Disease developed whilst working as a Macmillan nurse when I found I was getting an increasing number of referrals for patients with this disease. Textbook reading taught me about the symptoms and challenges encountered by people living with the condition. My greatest learning however came from these people themselves and their families. They taught me so much about their needs that sadly are not always recognised. We as a service are hoping to change this.

It will take time but I will eventually get to make contact with all of you and look forward to meeting and working with you.

The North West Wales MND Care Coordinator can be contacted by telephone on 01745 448720 extension 2772 or by e-mail on BCU.MNDCoordinators@wales.nhs.uk

 

Sioned Williams

Association Visitor

My name is Sioned Williams and I am new to volunteering with the Motor Neuron Association as an AV. I live in Pen Llyn, am married and also a proud mother to two boys aged 7 and 8.

I have previously cared for a close member of family who had Motor Neuron Disease and now volunteer with the association in the hope I will be of support to others – I feel very fortunate to meet individuals and their families who are always kind and welcoming, allowing me into their homes and lives.

Before my personal experience I knew very little about Motor Neuron Disease but I have learnt so much over the past 7 years and met lovely people along the way, I wanted to contribute back and am pleased to be volunteering now with the Motor Neuron Association. I look forward to meeting you!

Lynwen GriffithAssociation Visitor

My name is Lynwen Griffith, I live on the Llyn Peninsula in North West Wales, a very rural and beautiful region which is also a stronghold for the Welsh language. I live with my husband, our three children, two rabbits, and three dogs, and have worked in this area for 22 years as a community nurse.

My reason to become an Association Visitor (AV) was twofold, having nursed people with MND I felt that in my spare time I could offer support to these patients and their families. My second reason was as our area has a large Welsh speaking community, there were no Welsh speaking AV’s in our locality, and found that it was important that people should have a service available in their chosen language.

Since becoming an AV, I have found the work to be immensely rewarding, being able to support a person with MND and their families during immeasurably hard times. The support from the MND team is always at hand, being both sympathetic and supportive. My goal is to continue with this worthwhile role for many years and to continue enhancing my knowledge on MND and the support that is available to enhance quality of life.

 

MNDA Support Meeting

Next Meeting

When: Wednesday, December 12

Christmas Dinner in the evening. Please contact Roger Sowersby for more information

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